2 Weeks Old

Her face and chest have really filled out. No more ribs poking out and she has the most kissable cheeks. Her arms and legs are still skinny whinny but we are working on that.

Ellie decided that she was done being fed through a tube and pulled out her feeding tube. She wasn't using it much anyway so we decided to let her just nurse and see if she is able to get enough. She has done great since. She is nursing just fine and waking up when she gets hungry. Such a good little girl.

Yesterday as I was talking to Dr. Coen, he told me that he has never seen a baby with glucose issues like Ellie. Her numbers have been so random and don't appear to correlate with her eating - very strange. Dr. Coen is definitely not a rookie either. He has been a Neonatologist for 40 years, and he started his career in academia as a professor and researcher. We have felt very confident with him. He knows most answers, but when he doesn't, he knows where to find them. So he has been working with an Endocrinologist on Ellie and thankfully this Doctor has heard of instances where babies like Ellie don't regulate their feedback mechanisms right when it comes to insulin. There is nothing you can do about it, they just grow out of it after a few weeks. That was good to hear.

However, Ellie is determined to keep us all on our toes and just as one problem is solved another pops up. Our next adventure: cortisol. You guessed it, her levels are just not quite right so we need to check the function of her adrenal glands before we can go home.

We finally got some results on some blood tests for her low platelet count. It came out inconclusive -- so we don't know why her platelet level dropped, but she is doing fine now and platelets should no longer be an issue.